Today was a long day …Bare with me my cognitive abilities are making it so I am not able to figure out how to put up images , photos, and links to the site. The treatment for the cerebral vasculitis is usually high dose iv steriods and chemo. I have alot to still do in terms of tests to get down to a treatment plan for me , it is challenging for the doctor’s and myself due to my system being hypersensitive and the adverse reactions to many of the drugs used for treatments.
I am thankfull to find a group of people here that are very kind and open to everyone. After a long stressful day. I got a rest in and for an hour was able to attend this gathering. For me I am happy for one hour vs none. The daily medical is too much for my brain to process and it needs a break. They all started at 5pm, to celebrate a birthday , I am happy i showed just to say hi and feel like i am part of something ,