Today was a long day …Bare with me my cognitive abilities are making it so I am not able to figure out how to put up images , photos, and links to the site. The treatment for the cerebral vasculitis is usually high dose iv steriods and chemo. I have alot to still do in terms of tests to get down to a treatment plan for me , it is challenging for the doctor’s and myself due to my system being hypersensitive and the adverse reactions to many of the drugs used for treatments.
I am thankfull to find a group of people here that are very kind and open to everyone. After a long stressful day. I got a rest in and for an hour was able to attend this gathering. For me I am happy for one hour vs none. The daily medical is too much for my brain to process and it needs a break. They all started at 5pm, to celebrate a birthday , I am happy i showed just to say hi and feel like i am part of something ,
Lupus Life 
I am so sorry you had an 11 vial day–but so happy to find someone else who rates treatment that way. Hope you’re having a healthy good day.
Hi! Thank you!! 11 vial is a low day but just tired of it, you know. When they do many specialized labs it has come to 30 whoa. How are you? I hope well , I am not sure how to navigate around here as i need assistance, due to an event that happen with my brain as i have a disability in learning new tasks and understanding,processing and retaining information. It is the dream i have had for a long time to do this . Actually i have been charging this site name for 10 years , this is how much i want my dream to come true, Not wanting to give up . I hope to help other’s in any way i am able. Nice to meet you and Thank you. : )
lol funny but not at the same time
In fact no matter if someone doesn’t be aware of then its up to other viewers that they will help, so here it occurs.
Hi thank you for writing. Please help me to understand , due to cognitive dificulities i do not know what post you are responding to that i have possibly written , so i am not understanding this message. Please i would like to .
Thank you