HI

THERE IS SO MUCH I WANT TO SHARE ABOUT THE LUPUS LA ORANGE BALL THURSDAY MAY 8TH. DUE TO A BROKEN COMPUTER AND MY COGNITIVE DIFFICULITIES I WILL HAVE TO WAIT TILL I CAN GET SOME HELP . I AM EXCITED TO POSTS PICTURES, VIDEOS ON THIS WONDERFUL EVENT WHICH HELPS SPREAD AWARENESS, RAISE MONEY FOR NEEDED RESEARCH, SUPPORT GROUPS AND HELPS TEENS . NOT TO MENTION THEY ARE THE ONLY PLACE WHERE IN A SITUATION  YOU MAY NEED A BIT OF FINANCIAL ASSISTANCE THEY ARE ABLE TO HELP UP TO 500 DOLLARS TOWARDS A NEED U ARE NOT ABLE TO AFFORD. I AM HAPPY AND PROUD THAT A I WAS ASKED TO HELP AND BE INVOLVED IN THIS . I AM PROUD TO BE ONE OF THE EIGHT LADIES TO DO THIS OUT OF MANY IN LOS ANGELES. SO MORE TO COME WHEN I CAN GET SOME HELP SHARING ALL THE WONDERFUL ASPECTS OF MY ADVENTURE AT THE LA LUPUS ORANGE BALL!! TO BE CONTINUED…….

I HAVE BEEN THROUGH COUNTLESS SURGERIES, PROCEDURES, TESTS, ETC. WITHOUT PAIN MEDICATIONS. PAIN MEDICATIONS THAT  MANY PEOPLE NEED TO GET THOUGH A DAY I CAN NOT TAKE ANY!!!!  THEY GIVE ME SEVERE ADVERSE REACTIONS , THIS BODY OF MINE DOES NOT TOLERATE THEM. EACH DAY IS FILLED WITH EXCRUCIATING PAIN.  MANY TIMES I THINK HOW IS IT I AM LIVING IN THIS PAIN .  ENDLESS STORIES WHICH ARE HARD TO IMAGINE. BACK SURGERY /TYLENOL (WHICH DOES NOTHING FOR ME), HEART SURGERY (ABLATION) , RIGHT LEG SURGERY, BROKEN BONES, LIFE THREATENING INFECTIONS  TO NAME A FEW. THIS PAST OCTOBER I HAD SURGERY ON A SCALP MASS THAT WAS VERY DIFFICULT IT WAS SO PAINFUL I HAD MANY STITCHES INTERNAL AND EXTERNAL AND I COULD NOT MOVE MY HEAD IT HURT SO BAD THE ICE I USUALLY USE HURT TO PLACE ON MY HEAD.  THE ONE THING I DO FOR A DISTRACTION LITERRALY BLEW UP WHICH IS MY TV I HAVE HAD FOR OVER 10 YEARS.  WATCHING MOVIES IS SOMETHING THAT HELPS ME TO DISTRACT THE PAIN. INSTEAD I STARED  AT MY WALLS, WAITING IT OUT FOR THE TIME TO PASS. IT IS JUST NOW ALMOST HEALED. MY DISOVABLE STICIIES DID NOT ALL DISOLVE. MY POINT: THIS IS ANOTHER REASON (SOUND’S ODD ) TO HELP OTHER’S BECAUSE WITH ILLNESS BRINGS FINANCIAL INSTABILITY. IF I COULD I WOULD OF HAD A TV DELIEVERED THAT WAS SO DIFFICULT . FOR ME THAT IS THE CLOSEST I CAN GET TO PAIN MEDICATION. THE NEXT MOST PAINFUL THING WAS JUST THIS PAST FEB. THIS SPINAL TAP WHICH HAS PUT MY LIFE INTO ANOTHER FIGHT.  WISH ME LUCK TODAY NO PAIN PILL POPPING FOR ME.  JUST MY ICE PACKS , ASPIRIN FOR MY HEAD PAIN, AND COFFEE.

Kristen Johnston To Host Star-Studded Lupus LA Orange Ball

May 2, 2014

Kristen Johnston will host the 14th Annual Lupus LAOrange Ball next week.

The Orange Ball is Lupus LA’s largest annual fundraiser and is a special evening devoted to honoring individuals who work to improve the lives of those living with lupus through medical research, advocacy, and increasing awareness. Lupus LA’s Orange Ball, chaired by Debbi and Roger Cowan, will honor Phill Lewis with the prestigious Loop Award, Lannette and Scott Turicchi with the Daniel J. Wallace Founder’s Award and EMD Serono with the Medical Visionary Award.

Orange Ball guests will enjoy an unforgettable performance by The Voice’s Judith Hill, live auction that includes high-end items and once-in-a-lifetime experiences including the Walking Dead season 5 premiere and after party, as well as dinner and cocktails.

Among the stars expected to attend are Toni Braxton (Grammy Award-winning musician), Stacey Dash (Clueless), Billy Gardell (Mike & Molly), Reno Wilson (Mike & Molly), Taylor Armstrong (Real Housewives of Beverly Hills), Kellie Martin (ER), Jon Voight (Ray Donovan), Scott Michael Campbell (The Wedding Pact), Angie Everhart (The Wedding Pact), Sandra Taylor (The Wedding Pact), Ahmed Ahmed (Sullivan & Sons), Scott Grimes (American Dad), Dorothy Wang (Rich Kids Of Beverly Hills), Josh Altman (Million Dollar Listing), Heather Bilyeu (Million Dollar Listing), Shanna Moakler(Pacific Blue), Colin Ferguson (Eureka), Titus Makin Jr. (Star Crossed), Vanessa Branch (500 Miles North) and Katie Cleary (Deal or No Deal) and more.

Lupus LA Ambassadors include Sharon Stone (Casino), Paula Abdul (Grammy-winning singer), Toni Braxton (Grammy-winning singer), Terri Seymour (Extra), Michael B. Jordan (Fruitvale Station), Melissa Joan Hart (Melissa & Joey), Gilles Marini (Switched at Birth), Kellie Martin (ER) and Meredith Monroe (Criminal Minds).

A disease with no cure, lupus affects 1.5 Million people in the US, which is more than cerebral palsy and multiple sclerosis combined. Ninety percent of lupus patients are women. The Orange Ball raises funds for Lupus LA, which promotes lupus research, awareness, education and serves the needs of people with lupus and their families in Southern California. In the past 14 years, the Orange Ball has raised over $4 Million for the cause. To learn how you can “Get Into The Loop” or purchase tickets please visitlupusla.org or call 310.657.LOOP.

WHEN: Thursday, May 8, 2014

WHERE: Beverly Wilshire Hotel
9500 Wilshire Boulevard, Beverly Hills, CA

Daily events . In between all the paper work for everything you need . I can barly move and i have to use all my might to keep going.

Pet Scan is schedule for friday but my arm are to beat up and i need to rest it is too long of a thing for me they wrote me a note no eating or drinking except water . For me that mean going off my routine and in turn will be very ill for a few days from that .Waking  to my daily severe headache , severe neausea and not being able to do anything to try to calm it down and the only thing i do is drink some coffee but i am not able to leave the house even for an appointment if im not able to do this ritual of coffee , bannana with medicine, Heat, ice, then aspiring for the head. Then taking  my medicine other medicne. I don’t want to go into the details of the yucky stuff .This entire process just to try to move and goes takes a min of two hours up to four on a good day and by the time done have to rest for one hour before leaving it has to be very planned out. If I do not have a bannana with the medicine then my gastropherisis gets to bad in the morning part of the morning is trying to move by coffee for my head pain , then lying on heat to loosen up , then ice to numb the pain (i do not take pain killers, just aspirin and ibuprofen) They also told me they may have trouble due to my veins that is another story and obstacle , I found out for this they can not use my foot so i need to postphone it and schedule one of the many other appointments in it’s place .